The lingering effects of Chemo, such as chemo induced peripheral neuropathy and fatigue, continue to play a part in everyday life. Experts tell me both can take up to a year to resolve, and in the case of fatigue, sometimes even longer. However, life goes on and I am finding ways to cope, although not without being sometimes caught off guard.
Lingering Effects of Chemo: Neuropathy
Lately, I have noticed the neuropathy I experienced in my fingers and feet has been less and less noticeable. At first, it seemed as though it would improve for a few days and then would seem as uncomfortable as ever. However, most recently I have been feeling it just slightly in my hands, although more pronouncedly in my feet. I am relieved and happy this sensation seems to be dissipating and hope soon it will be completely gone!
Lingering Effects of Chemo: Fatigue
Life is busy. There are many things to do to keep house and work. My list of things to do seems endless. I try to do things in chunks and to make the most of the energy I have, but I still sometimes find myself surprised when I come home from a grocery shopping outing and feel the need for a nap. Fatigue makes keeping up on household chores a challenge, so I have adjusted my expectation for what I can get done and have tried to organize things so that I have clean clothes for work and food to throw together for meals. But, beyond that, I simply have had to relax and let my best be okay for now. This is not forever, so I trust that before long, it won’t be such a chore to keep up on chores and the upkeep of housework will feel a little less overwhelming.
Lingering Effects of Chemo: Stunted Hair Growth
Happily, I have short hair sticking up on the top of my head where some new growth has begun to crop up. Although I have begun to see some hair growth in places, there are other places that remain oddly hairless. I do not know if I can expect this to continue long-term or if it just needs some more time to begin to show up.
Lingering Effects of Chemo: Sunburn
Earlier this week, I had the pure joy of taking a nap near the Pacific Ocean. A lovely pair of palm trees provided shade for my afternoon slumber, but since the breeze was somewhat cool, most of my body, including my arms and face, were fully covered, except for my legs and ankles below the capris I was wearing. Time stands still for no one, so upon waking, I found I was in full sun.
Since the breeze was refreshing I did not notice the heat and thought nothing more of it until later that evening when my ankle began to itch. Only then did I realize the bright redness on both of my legs where they had been carelessly exposed to the afternoon sun. My oncologist insisted I take care to avoid the sun while I was on chemotherapy, but after I finished chemo, I began to spend more time out of doors at various times of the day. Although I had only been exposed to the sun for about 20 minutes that afternoon, I suffered for days from the pain of this sunburn.
Hopefully, the chemo effect will soon be completely out of my system, but until then, there will be no more carefree siestas in the afternoon sun without being fully covered to protect myself from the sun.
When I was finishing up chemo, I decided I wanted to do positive things to establish a healthy lifestyle as a person who had moved past cancer treatment. All through chemo I worked to maintain a healthy, balanced diet and regular exercise routine. After treatment, I wanted to keep up these positive changes, but I also wanted to do something to mark the transition from being a patient to thriving in post treatment life.
One of the ways I found to do this was by signing up for a local American Cancer Society Relay for Life fundraiser. So, I signed up as a team captain and began recruiting people to be on my team. With just two weeks until Relay for Life of Saratoga, my team remains small. But, I am happy for those who have chosen to join me and to mark my transition back to life as I once knew it. I am grateful for their support and look forward to a fun-filled time.
Just today, I became a Hero of Hope speaker and will share at the Luminaria Ceremony during the Relay event. If you find yourself in the San Jose area and have time to come by St. Andrews Field at 13601 Saratoga Avenue, Saratoga, CA on July 23, 2016 between about 8:30 or 9:00 p.m., I will be sharing some thoughts on life from a cancer survivor’s perspective.
Other Lingering Effects of Chemo
There are other effects of chemo that remain with me. In addition to peculiar physical side effects, I have a new perspective and a more grateful attitude. While I find myself frustrated that I have not been able to keep up contact with friends as I did while on chemo, I still find myself thinking about them and am grateful for their ongoing support and presence in my life. I feel amazingly blessed to have so many people in my life who care about me and are willing to walk along what has been a difficult path this past year. Although I do not know what the future holds, I am expecting wonderful things because I know I will continue to be surrounded by the best group of people who will accompany me no matter what comes my way!
Thanks for being one of those wonderful people!