Stories from a Life I Didn't Plan

Tag: Hijacked (Page 3 of 7)

Two Months Post Chemo and Still Surprised

Two Months Post Chemo and Still Surprised

Two months post chemo and still surprised by fatigue and things that trigger emotions.  Even though I have resumed normal activities and am going about life as usual. I have been keeping a pretty steady pace and for the most part have been fine. After going back to work, I had some challenges readjusting to being back in a world that looked the same, but had changed. But, I made it and was glad I had gone back for the end of the year.

Now with school out, I have been filling my days with travel, packing up my classroom to move schools, transporting things to the new school site or to be stored, reconnecting with friends, and exercise. I have been feeling good and enjoying this new phase of life. However, I quickly forget that just over two months ago, I was a chemo patient.

My fatigue doesn’t seem to grip me constantly, so I can keep a pretty full schedule for awhile. Then suddenly, I find myself unable to deal with the emotions that accompany the normal stresses in life and realize I am tired and in need of a nap or a long night of sleep. The good news is that it is exactly that simple, so why can’t I remember this simple fact?

Triggers

A cancer diagnosis comes with an element of fear that takes time to overcome. Occasionally, that fear pops up out of the blue, but more often I find that it is triggered by treatment related issues or circumstances. For example, this week I had to schedule follow up testing for the end of the year. Both of the procedures I had to put on the calendar were tests I had in the hospital when the cancer was diagnosed. Naturally, scheduling those tests triggered feelings similar to those I felt the first time I had them since they caused me to remember and relive, at least on some level, the emotions around my diagnosis. However,  if I had been more rested, I think I would have faced them more quickly and put them to rest without having to weather such a tempest in a teapot.

Anniversaries

And, the anniversaries are looming larger on my calendar. The anniversary of feeling sick, learning I was ill (on my birthday, no less!) yet not knowing the cause, then being told I had cancer one day and having surgery to remove the tumor the next. I anticipate a certain amount of emotion as these dates approach, but I know that they will pass and I will be fine. They are just dates.

Recurrence

Recently I had the chance to share with someone who asked me if I feared a recurrence that I do not expect the cancer to return. I am striving to live my life to the fullest, while doing everything I can to live a healthy, anti-cancer life. But, it could still come back. I couldn’t prevent cancer the first time, so I know I can’t prevent it from coming back, either. What I can do is make the most of my life. Do what is important and let go of the small, insignificant things that pop up that really do not matter, but can quickly steal my joy, time, and attention, if I let them. I am doing my best to not let them! It is easier said than done, but I am finding the effort worthwhile.

Why Am I Surprised?

While I do not know the answer to why I am surprised by fatigue and the impact fatigue has on my emotions, I do know I am planning to make rest a priority and to find ways to remind myself that it will take time, more than I realize, to regain my stamina for the everyday pace of life. Taking a nap or sleeping an unusual number of hours some nights is exactly what I need in order to keep up with my day in and out activities. Hopefully, this will begin to come naturally and I will not reach the point that I am stressed and emotional over insignificant things.

Any suggestions for other ways I can be mindful of pacing myself and getting enough rest?

Finished Chapters and Tales Yet to Be Written

Finished Chapters and Tales Yet to Be Written

I have come to a time of finished chapters and tales yet to be written at the end of this  school year more than almost any other. After a challenging return to teaching for the last eight days of the school year, I settled into the routine and had a special time saying goodbye to current and past students, as well as colleagues, effectively closing a chapter in my life.

Packing and Cleaning Up the Classroom

Beginning after the final bell on the final day of school on Thursday of last week, I began packing up my classroom for the move to a new school site. Once I knew I was going to have chemotherapy, I had packed up most of my personal teaching materials and belongings in the classroom and taken them home to store while I was on medical leave. So, I began packing what remained of my belongings along with the district owned materials I would need to move for the upcoming school year.

Thankfully, packing went fairly quickly and, with help from my niece, I was able to do some cleaning out of outdated materials and supplies that the incoming teacher, who is a friend of mine, decided she wouldn’t need for next year. This process took several days, but it was with great joy and relief that I turned in my sign off sheet and keys at the school. With a shout of “woohoo,” I celebrated the end of a bittersweet chapter in my life. As I remember the good times and all I learned, I move forward to a new school with excitement and anticipation, commemorating finished chapters and tales not yet written.

Preparing for Summer School

With the financial stress of medical bills and a partial month’s pay once my sick leave ran out, I decided that for the first time in years I needed to teach summer school. Since I have rested and decompressed over the course of the last several months, I do not need the summer break desperately as in most other years. And, I thought it might be a good way to ease back into the routine of teaching to teach shorter days in two week increments.

So, yesterday I had my first day of professional development and orientation for the summer school program I will be teaching in a neighboring district. I have been anticipating learning from collaborating with teachers who bring a whole different set of experiences and preparation to teaching. It has been interesting to learn how a district other than the one I teach in during the regular school year operates. I am finding the interaction with teachers from a different perspective refreshing and challenging alike. The freedom I have to develop and implement the curriculum has infused excitement and enthusiasm into the task. And, my grade level teaching colleague is new to the profession, which allows me the opportunity to share my experience and knowledge with her as we jointly plan lessons for our first graders.

Learning a New School Culture

With the move to a new school, I must learn who is who and how things work at the new site. So far, I have met just a handful of people at the new school and have focused on being a positive addition to the staff. As frustrations arise, I find myself seeking advice from a teacher friend who knows the school community and can help me to navigate these yet unknown waters. I hope to quickly learn more about the school dynamics once school starts so that I can fit in with colleagues, students, and parents alike.

Unfortunately, at this point there is some doubt about what grade level I will be teaching and I have not been able to get keys so that I can begin to unpack and settle into the classroom. Hopefully, the issue will be quickly resolved and little by little I can prepare for the upcoming school year instead of having to rush to try to do it right before the new school year begins.

Glancing Back, but Moving Forward

This juncture of finished chapters and tales yet to be written finds me looking back in celebration of the lessons I learned, moments I savored, people I cared about, and challenges I faced. But more than that, I am looking forward with anticipation of the next exciting chapter filled with new challenges and people, as well as unexpected joys and lessons to be learned. It is good to be moving forward in anticipation of even better things ahead!

Finding a Balanced Life After Chemo

Finding a Balanced Life After Chemo

Finding a balanced life after chemo has been a challenge since going back to work. While I was on medical leave from work during chemotherapy, I had ample time for exercise and cooking healthy meals when I was well enough.

Cooking

I enjoyed trying new, healthy recipes in the kitchen and had a lot of satisfaction in knowing that I was doing something positive to regain and maintain my health. Even still, I enjoy cooking at home and generally choose to come home and eat, rather than eat out where I do not know what the ingredients are in the dishes. However, now that I am back to work, I find that I have much less time to spend in the kitchen to try out these new dishes. Instead, I opt for simpler fare that I can warm up or cook in a few minutes after coming home from a tiring day in first grade. In fact, I think it was scrambled eggs for dinner twice this week!

As time goes on, I hope to find a better balance of life and work, but since I returned to work for the last two weeks of school the flurry of activity consumed most of my time and energy. Hopefully as I continue to recover more of my strength and stamina over the summer, I will find it easier to return to a more balanced life that includes a little more time in the kitchen when school resumes in August.

Exercise

As often as I could during chemo, I would walk. I tried for at least a half an hour a day, but on some days I simply couldn’t get outside for it. However, as time went on, I found that I really enjoyed the natural mood elevation I got from taking a walk. And, friends would sometimes walk with me, making the outing doubly enjoyable. But now that I have begun the Living Strong, Living Well program and have gone back to work, I no longer have the time and energy for these daily outings. Teaching keeps me on my feet most of the day and the Living Strong, Living Well exercise program provides a different kind of exercise that I quite enjoy. Nevertheless, I find I miss my long walks around the neighborhoods near my house. I miss looking at nature and meeting new people along my customary route. I do not know quite how to find balance in this area, but hope that over time I will adjust to the new forms of exercise and not miss my walks quite so much.

Without a doubt, finding a balanced life after chemo will be a process, but I am anxious to maintain my healthy patterns that have helped me to feel so robust and positive about the future. If you have any suggestions for how I might achieve this, I certainly hope you will share your words of wisdom. Or, if you face a similar struggle, I hope you will share that as well.

As always, thanks for continuing with me on the journey of life!

 

 

Back to Work After Chemo

Back to Work After Chemo

Going back to work after chemo has turned out to be challenging in ways that I had not anticipated. Consequently, this week’s post will be comparatively short.

School

Returning to work was going to be hard physically, I thought. This first week back, I had a commitment every evening after work, so I anticipated being fatigued. Little did I know I was wholly unprepared to deal with the dissonance of reintegrating into teaching at my school, an entity I thought I knew intimately, but which has continued to develop and evolve while I was cocooned for chemo. While I was on leave from work, I thought about how the people at work were not part of the cancer detour, but I failed to realize that I wasn’t part of those months in their lives or the school community, either. I am back seeing familiar things and faces, but I expected everything to be the same and for me to fit right back in. However, since I didn’t live through events with the rest of the staff or experience the ongoing metamorphosis of the school, I have realized that I am out of sync.  Once familiar things have changed and catch me off guard. And, sometimes, my absence has been forgotten about by others and I find I don’t know what is going on for lack of information. For me, this has resulted in an emotional first few days back at work.

Although dealing with the machinery of the school has been a challenge, being back with my students for the last part of the year has been pure joy. The students have adjusted nicely to having me back and are happily requesting to sing songs throughout the day and play games during physical education that I taught them in the few short weeks I worked early in the school year. In spite of my absence, they have had a good year. For this, I am thankful. And, the opportunity to have closure with them is a blessing. In fact, next year I will be assigned to a different school in the same school district, so I am taking advantage of these last few days of school to say goodbye to staff and students alike. I have loved reconnecting with former students and been glad for the chance to tell them goodbye.

Living Strong, Living Well

Twice a week the Living Strong, Living Well program has given me an way to decompress and de-stress after work through physical exercise. And, while I notice my emotions lifting after exercising at the YMCA, I also know that aerobic exercise and strength training  correlate with a lower recurrence of cancer. So, I am pleased to have a dual benefit from my workouts and hope to be able to continue once the program ends.

Furthermore, I have found comfort in working with this group of survivors as we commiserate or laugh about side effects, while focusing on becoming stronger and healthier. Following orientation day, all participants seemed to be looking forward and no longer defined by the disease that gripped us. A sense of anticipation of better things ahead and an easy camaraderie has developed, both of which inspire me to do my best and be a cheerleader for other participants.

Life is Good

Although I have faced unexpected challenges going back to work after chemo, I am happy and grateful for the people, resources, and opportunities that continue to support me in my journey of life as a cancer survivor.  Life is good. Truly, it is good to be alive!

 

From Cancer Patient to Cancer Survivor

From Cancer Patient to Cancer Survivor¹

On Tuesday, life took a major shift from cancer patient to cancer survivor when the oncologist cleared me back to regular, everyday life. With the exception of taking care to not put too much pressure on the mediport site, I can do just about anything I used to do. And, Monday, it is back to work. So, little by little, I am venturing out into the world and resuming some of those normal activities that were restricted until this week.

Grocery Shopping

Naturally, on the way home from the oncologist’s office, I stopped by the supermarket to pick up some fresh fruit that I could enjoy without have to peel to eat. Unpeeled raw fruits and vegetables were restricted from my diet until given the green light after chemo, so I was anxious to get some of my seasonal favorites. Surprisingly, instead of finding going into the grocery store exciting and freeing, I found it a little overwhelming because of the number of people in the store. I bought minimal fixings for salad and quickly exited the store. Nevertheless, I thoroughly enjoyed eating lettuce, raw carrots and unpeeled tomato.

However, the following day, I set out at a different time, in a less crowded location, and found delight in selecting berries, grapes, apricots and nectarines–none of which are going to be peeled. Meals have been fruit heavy since then, to the delight of my taste buds! Although I may continue to seek off times to shop, as much as possible, until I overcome my discomfort with the crowds, I am enjoying picking out fresh fruits and vegetables to reincorporate into my diet.

Living Strong, Living Well

This past Monday, I began the Living Strong, Living Well program at a nearby YMCA. The professor from Stanford University who facilitated the orientation session emphasized that the program’s focus was wellness, so we were not obligated to state what kind of cancer we had had or anything to do with our treatment or the disease. Instead, she asked us to share what we hoped to get out of the program and something we valued.

These instructions fit in perfectly with my goal in joining the program, which was to transition from cancer patient to cancer survivor, and to no longer be defined by the disease that gripped me, but by who I am as a person. It was incredibly freeing to introduce myself and to say what I wanted to gain through the program and what I valued. Not to have to tag on anything about the diagnosis, the emotional roller coaster that started after receiving a cancer diagnosis, or the agonizing months of treatment was a redefining moment and one more step in seeing myself as a someone who is healthy and thriving.

Back to School

In preparation for my return to school for the last eight days of instruction before summer break, I needed to touch base with the long-term substitute teacher who has been in charge of my class and my first grade teaching partner before Monday. It was bittersweet heading back to school yesterday to meet up with them, but the anxiety I felt before arriving, and the immediate coughing fit that overcame me upon my arrival, quickly disappeared as I was warmly greeted by colleagues and students.

From Cancer Patient to Cancer Survivor

Maybe someday my hair will grow long and thick like it was in 2009

I must confess I still find it difficult not to protest when people comment that I look good and that all the rest I had must be the reason. Because my work colleagues have not accompanied me on the cancer detour, and in fact have not even been told by me what illness I had, they do not know what caused my weight loss, that the reason my hair looks almost exactly the same as before is because what didn’t fall out quit growing, or that the months of chemotherapy could hardly be described as restful. While the inward battle of emotions rages, I try to maintain a benign countenance and politely respond to their well-intentioned comments. Admittedly, I am extremely over-sensitive, but, as with all other things, I hope this too will pass. And one day my hair might grow back long and thick!

As students rushed up to greet me with hugs, I fought the urge to pull back for fear of contracting some illness. For months I have dutifully avoided human contact to prevent infection, so I am still adjusting to the fact that my immune system can now battle disease and I no longer need to take such rigid precautions. I may have to continue to remind myself of this fact over the next few weeks, until it becomes an automatic reaction to enjoy the embrace of others without trying to pull back.

Meeting Up with Friends

While on chemo, I rarely went out for meals because of the risk of infection. If I ventured out, it would normally be to sparsely occupied places where I could maintain a safe space from other diners. Now that I am transitioning from cancer patient to cancer survivor, I can meet up with friends in public without having to estimate if I am far enough away from any diner who might be coughing or sneezing. While I do not find coughing or sneezing pleasant to be around, I am happy that I am able to meet up with friends over a meal  to reconnect after these months of virtual isolation during chemo.

Although meeting up with friends is a welcome change, my long-term dietary changes remain in place. So, I remain ever mindful of my menu selections in order to promote continued health. I am not finding the dietary shifts difficult or limiting, but instead find something of a rewarding challenge in selecting something appetizing that is also healthful.

More of Daily Life

As time goes on, driving longer distances, sitting on a crowded beach, and other normal activities will also mark the shift from cancer patient to cancer survivor. But for now I am satisfied to gradually resume quotidian normalcy.

Which of these daily activities do you think you would most enjoy resuming?

1 Hewitt M., et al., eds. From Cancer Patient to Cancer Survivor: Lost in Transition (National Academies Press, 2006).

Regaining a Sense of Well-Being After Cancer

Since receiving my diagnosis last year and undergoing months of treatment, I am finally regaining a sense of well-being after cancer.

When diagnosed with cancer, life changes in so many ways. A fairly common effect is the loss of a sense of well-being. Gone is the confidence that you are healthy. All of a sudden, a nagging little pain or fleeting discomfort you would have assumed was nothing before cancer becomes a big deal and another thing to talk over with the doctor on the next visit. I imagine the ongoing treatment and risk of side effects or infection contributes to this feeling of needing to keep track of each ache, pain, or anomaly and ask the doctor if it is normal. For months, a doctor wants to know all of those little things, which creates a hyper-focus on how the body is functioning and feeling.

Once treatment ends, that hyper-focus remains, but the ongoing follow up and reassurance of having the knowledgeable doctor regularly tell you your complaints are nothing to worry about is no longer there. Making that shift from being dependent on someone else to tell you that you are okay to analyzing the facts and believing you are healthy is one of the transitions faced at the end of treatment.

Similarly, the possibility of a recurrence can lurk in the mind and cause worry and stress, especially when faced with follow up tests and procedures. Certainly, having faith helps with all of those doubts, but the reality is I was a person of faith when I got cancer. I still had cancer.

So, right now, I find myself in the lull between treatment and the first round of follow up testing to confirm what we believe the chemotherapy accomplished. Almost all the time, I live with a sense of peace and an expectation of a long, healthy life. But, on occasion that lurking thought in the back of my mind rears up and causes a momentary worry that passes quickly. I am grateful for these moments because they are reality checks for me. Yes, the reality is I had cancer and there exists the possibility that it could come back. But also, I have faith in God and in modern medicine and I believe that the treatment I underwent rid me of the disease and will prevent a recurrence.

What does regaining a sense of well-being after cancer and the end of my detour mean for my life? Loads of change for one thing! Life will be different. My body functions differently now. I look at life differently. I have to be more purposeful. For example, a huge focus is what goes in my mouth. Is it good for me and will it help my body function optimally? Another important change has been (nearly) daily exercise that lifts my spirits and gives me time to talk with friends who sometimes accompany me on my walks. I have come to love spending time walking outdoors and the time for reflection that comes with my footfalls on the cement. The elliptical is a nice inclement weather back up, but doesn’t allow for reflection in the same way.

But, most importantly, I have learned to focus on people and not just tasks. Being a goal-oriented person, I have spent years working toward this or that end, and have enjoyed the challenges. However, over the past months, I have enjoyed the time for conversations with old and new friends. Connecting or reconnecting with friends has made me feel more fulfilled than spending long hours at work or trying to meet some goal I had set for myself. Don’t get me wrong, I will still strive to be an exceptional teacher, but I also want to live with balance so that I can also continue to be a good friend.

And regaining a sense of well-being after cancer means the lurking thought in the back of my mind that someday cancer might come back only makes me realize I have a limited number of days allotted to me and I need to make each day count.

Finding the New Normal After Chemotherapy

Finding the New Normal After Chemotherapy

During the past few weeks, I have been trying to find the new normal after chemotherapy. Although I am thrilled to be finished with ongoing treatments, I am not yet back to normal activities. With enthusiasm, I have increased and broadened my activities, while still maintaining precautions against exposure to illness or overtaxing myself.

Fatigue and Lagging Stamina

However, I have found my stamina has eroded over the past few months and if I become too ambitious, I need a couple of hours of sleep in the afternoon. It has been surprising how fatigue creeps into my daily schedule. Other cancer survivors have told me that I might need naps for a long time, but I have high hopes for a speedy recovery. Nevertheless, as I face the reality of going back to work and getting on with life, I wonder what unexpected physical limitations might crop up.

In Limbo

These few weeks between the end of treatment and being released to return to work and daily normal activities have become rather like living in limbo. My chemo treatment schedule no longer rules my calendar, giving me much more freedom to fill my days with other things. However, since I have not yet been released back to my regular activities, it has become a balancing act to try to find productive activities that allow me to regain a sense of normalcy in life while still protecting me from infection and fatigue.

Catching up on regular medical exams and dental care has filled some of the time, but I find cabin fever to be increasing as time marches on. Still, the dilemma of what I can do depends largely upon my energy level and whether or not an activity will expose me unduly to possible illness. For example, I used to drive myself to visit family or on road trips without a second thought. Now because fatigue sets in, I do not venture very far when driving myself, but instead depend upon the kindness of others to transport me here and there. It has been a limiting lifestyle adjustment that I hope will be short-lived as my energy level and stamina improve.

Lingering Side Effects

Finding the New Normal After Chemotherapy

May 2016

Many of the side effects from chemotherapy have abated over time. Happily, my hair has begun to grow back again, filling in the balding spots I worked to cover during chemo.  Still, a couple other side effects are lingering longer than I would like. While I still hope that they will go away eventually, and I realize it is early days yet, only time will tell if they remain or not. Chemotherapy Induced Peripheral Neuropathy (CIPN) is one side effect that continues to plague me. At times it seems less bothersome than others, but often in the evening, it seems to intensify and feels as unpleasant as ever. In my next appointment with the oncologist, I will ask him about trying some of the remedies others have suggested, in addition to the vitamins recommended. So, I am waiting to see what the new normal for these side effects will be.

Living Strong, Living Well

To help regain strength and stamina, I have registered for Living Strong, Living Well, a twelve week program sponsored by Stanford University that is designed specifically to help recovering cancer patients once they have finished treatment. Although I have rarely been a regular at the gym, I look forward to starting this program  in a couple of weeks at a nearby YMCA and hope to see noticeable improvement quickly. I want the new normal to feature a strong me.

Relationships

Finding the new normal after chemotherapy in relationships is an ongoing process. Many have walked through this detour with me, enabling a new normal to develop in the process. We have already identified and adjusted to subtle and not so subtle changes that emerged during my cancer detour.

However, for those at work or others who were otherwise distanced, I will have to find ways to reconnect with them and to move forward without having to relive and recount every detail of the detour. Establishing boundaries will help me to resume normally activities and pick up relationships that have been on pause, while maintaining balance and perspective, as well as keeping me from constantly reliving the ups and downs of chemotherapy.

How to form new relationships authentically as a cancer survivor will also be part of finding the new normal. The cancer detour is part of my story and has shaped who I have become. How my experience impacts the development of new relationships will be part of finding the new normal after chemotherapy. I look forward to the adventure!

Resources

Thankfully, in addition to family and friends who have supported me throughout the cancer detour, there are many resources available to help in finding the new normal after chemotherapy. Both the American Cancer Society and National Cancer Institute offer online resources to support patients making the transition from active treatment to normal life.  And, the Silicon Valley is replete with resources, such as the Living Strong, Living Well program and plentiful Survivor Support Groups available through different agencies and non-profits, like Cancer CAREpoint.

Undoubtedly, there will be unexpected challenges as I am finding the new normal after chemotherapy, but I look forward to facing each challenge with faith and hope.

Thank you for your continued love, prayers, and support as I wrap up this cancer detour!

The American Cancer Society Relay for Life

The American Cancer Society Relay for Life

What is The American Cancer Society Relay for Life? I had heard something about it, I had never really given it much thought. However, after being diagnosed with cancer last summer, The American Cancer Society has provided me invaluable education and resources to help me navigate my cancer detour. I am infinitely grateful for their support of cancer research, education, and community awareness programs.

This year as a celebration of finishing chemotherapy and returning to a strong state of health, members of my family, friends, and colleagues have committed to walking with me in Relay for Life of Saratoga. If you would be willing to donate or to walk with us, I hope you will visit my page and support Team Chel! in this event.

 

Writing on the Heart

Writing on the Heart

During the past few months, I have written about the many ways my family and friends have shown their love and care for me, which I have come to think of as writing on the heart. By how we respond to others, we leave little notes written on their heart. These etchings can be bitter or sweet memories. It all depends upon us and how we make them feel. In recent findings by psychologists John and Julie Gottman, relationships that succeed over time have two things in common: kindness and generosity. The partners in these relationships respond positively to bids, or requests, to pay attention to things they are interested in and that is like writing on the heart with positive words of affirmation and love.

Recently, I was in a situation and I needed to reach out for help. Although I used to think of myself as quite the independent person and tried to do things on my own, I have found that I need people a lot more than I thought. In this situation, my help came from a source I hadn’t thought to reach out to at first. I hated to impose, but I really needed someone’s help. It was a relief when the person said sure and stayed with me until the problem was resolved. It was reassuring to know I wasn’t alone and that someone with more knowledge about something was there to advise and support in that moment of need. That person was writing on the heart, my heart, and saying you matter. I care. I am your friend.

Last year I faced another situation I could not resolve on my own. One of the hazards of teaching primary grades is that sometimes they pass on runny noses, upset stomachs, or little critters from their head to yours. In all my years of teaching, I had never had the latter happen until last year. As I sat on the couch one evening as it neared bedtime, I felt the eerie sensation of something crawling on my head. I reached up and pulled a live louse out of my hair. Since I live alone, there is no way I could have given myself lice, but I also knew there was no way I could rid myself of them. So, just when I should have been settling down to sleep, I was calling Julie, a teacher friend of mine, and asking if she would help me. Without hesitation, Julie went to the all night pharmacy, got the necessary shampoo and comb, and came over to remove the remaining lice and nits out of my hair until about 1 o’clock in the morning. It was gruesome and wholly unpleasant, but Julie did it because she is my friend. She was writing on the heart, my heart, and saying you matter. I care. I am your friend.

This week, I lost a fellow on the cancer journey: Geraldine Sims. Although she was fighting an arduous battle herself, she took time to reach out to me with encouragement and kindness. She prayed for my recovery, even when faced with the reality of her own failing health. She challenged me to have greater faith, even when things looked bleak, and to love and encourage others in spite of my own suffering. Her example of loving support was writing on the heart, my heart, and saying you matter. I care. I am your friend and sister in Christ.

I could tell you story after story about how people over the past few months have been writing on my heart with words of encouragement or acts of kindness. How I wish I could share about each person who sent a card or package that arrived at just the exact moment to encourage me when it was most needed. Or, the hug coming just at a moment I felt weak and hopeless, and the warmth of love stuck me back together and renewed my strength to go on. Each person was writing on my heart, making it stronger, making it more loving, making me a little different person through their love and affirmation.

So, I have been thinking about myself and what I might be writing on the heart of each friend or family member. I want to be purposeful and not reactive. I want each message to be positive, not negative. I don’t want to write I am too busy. I don’t have time. You are unimportant. Something or someone else is more compelling than you right now.

Instead, I want to be writing something positive like the friends I mentioned here: You matter. I care. I am your friend and I am here for you–anytime, always, no matter what.

How about you? Has someone been writing words of love and affirmation on your heart lately? I hope so!

Please know you matter. I care. I am your friend.

Looking Back on Chemotherapy

A few weeks ago, I began dreaming of life after chemotherapy and suddenly here I am. Chemotherapy is over! As I am looking  back on chemotherapy, which has dominated the past few months of my life, I feel overwhelmingly grateful.

Looking Back on Chemotherapy with Gratitude to God

First, I am grateful to God that I had multiple symptoms that enabled my doctors to detect the cancer at an early stage. Often, people have no symptoms until later stages when cancer is more widespread and difficult to treat. The cancer I had was found when it was still self-contained in one region of my body and had not spread to lymph nodes, blood, or bones. This gives me a positive outlook for continued health, for which I am infinitely grateful.

God was also very near during my darkest moments. He listened when I talked only to Him about the pain, uncertainty, and fear that came with the diagnosis, deepening my faith and trust in Him. He heard me when I cried alone in the night and brought me peace and comfort. God gave me time and provided the kind of support I needed to process having cancer and being on chemo. He has given me renewed purpose and hope for a bright outlook for my future. God has taught me to “live to live” and I am grateful.

Looking Back on Chemotherapy with Gratitude to the VMOC Staff

Asleep in Chemo Chair


Asleep in Chemo Chair on Infusion Day

I am also grateful for a kind, compassionate staff that cared for me during my treatment. From my first visit to the oncology practice where I received chemotherapy treatments, I received kindness and compassion from all of the staff members. Beginning at the receptionist’s desk when I walked in, to the schedulers’ desk as I left, each person made me feel like I mattered because they cared.

My now familiar name and face are readily recognized by everyone. Each person dealt kindly with me and made allowances for my emotional moments, even the negative ones. They showed sympathy and understanding when I didn’t even understand my own emotions. Their kindness and compassion created a safe place for me during treatment–so safe that I could sleep soundly for part of infusion day.

On Tuesday when I finished my last chemo infusion, I walked out of the chemo infusion room with a warm hug from one of the oncology nurses and a celebratory certificate of completion signed by all of the staff. They gathered around the scheduling desk to cheer me on and wish me well. Although it may sound silly and inane, I nearly broke out into tears. Their gesture of support and recognition was so touching and their well wishes were utterly heartfelt. They overwhelmed me with their compassion. As I am looking back on chemotherapy, I am grateful that such a kind, compassionate staff cared for me on the cancer detour.

Reflecting on Chemotherapy

Looking Back on Chemotherapy with Gratitude to My Family

When I was diagnosed with cancer last August, my family hastened to surround me physically, demonstrating their love and concern. They were with me in the hospital and have continued to surround me in so many special and felt ways. I have seen over and over how blessed I am to have such a loving, supportive family.

My mom came for almost every round of chemo. Only when she was sick did she stay away. Even though the long trip was difficult and so was dealing with an often cranky and emotional chemo patient, she still came willingly with a helping hand. She ran errands, cooked healthy meals from new, unfamiliar recipes, and slept in a bed made of her own fears and sadness about me having cancer. She didn’t burden me with her struggle over my health, but instead worked to lift me up and help along the way. Her hugs made life easier and helped me to remember we would make it through this together.

Dad, Mom, my sisters, aunts, uncles, cousins nieces and nephews showered me with their love in so many ways it would take an extremely long post to list all the special things they have done to show they cared for me. My sisters all picked up the phone when I called, helped me grapple with difficult issues, and loved me in the process. Each one gave me something useful and precious to help me through these challenging months: heavy duty work gloves to use when I grabbed something out of the refrigerator or freezer, comfy slippers, delicious triple ginger cookies to help with my persistent nausea, and packages in the mail with special seasonal treats.

As I am looking back on chemotherapy, I am grateful to my family for helping to give me strength to keep fighting.

Looking Back on Chemotherapy with Gratitude to My Friends Both Near and Around the World

If you’re reading this post, then I am grateful to you. Like my family, friends old and new, near and far have surrounded me with their love.

Even if I have mentioned before the dear friends who went to the store to pick up needed items for me, sent me cards and packages in the mail to encourage me, took me to chemo, took me to the hospital, once even in a borrowed Tesla Model S, drove me to or from procedures, called to remind me I was loved and prayed for, Skyped or talked via Facebook Messenger to remind me I belonged and I mattered, posted encouraging comments on my blog, Facebook page, or CaringBridge site or otherwise let me know you were praying and wishing me well, it bears mentioning once again. You were a tremendous blessing to me and I thank you!

All of you have helped me realize how rich my life is with you in it and just how blessed I am to have such an amazing network of people who care for and support me. You have made this detour less lonely and forsaken. As I am looking back on chemotherapy, I am infinitely grateful to you for accompanying me so lovingly and constantly.

Looking Back on Chemotherapy and Looking Forward with Gratitude

Looking Back on Chemotherapy


Last day of chemo with my 20 lb. chemo bag

Now as I am both looking  back on chemotherapy and beginning to look forward to life after chemotherapy, I know I will undergo more tests and procedures to make sure I remain healthy, but I am confident that everything will be fine. And, I know that no matter where my continued journey of life takes me, even if another detour pops up somewhere down the road, I will be well accompanied.

Thank you for being in my life and for showing me  how rich I am!

 

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